Kaylee’s Course raises $57,500 for researchWritten by Vicki L. Kroll | | firstname.lastname@example.org
About 500 runners and walkers hit the trail Oct. 10 for Kaylee’s Course, the fourth annual race for progeria.
The event, which included a silent auction, raised $57,500, according to Tim Halko, Kaylee’s father.
“[My wife] Marla and I really appreciate the support we’ve received from the community. This is the most money we’ve raised so far,” he said, adding the first three races brought in about $110,000.
Funds will go to the Progeria Research Foundation, a nonprofit organization dedicated to discovering treatments and a cure for the condition.
“Kaylee is now old enough to know that she has progeria, and she understands that everyone at the walk was there to support her,” Tim said. “As her father, it’s a great feeling to see this many people care about your daughter and want to help find a cure.”
“With the advancements made over the past few years, we’re optimistic about Kaylee’s future,” Marla said.
Kaylee is one of 53 children in the world who has progeria, a rare, fatal condition characterized by accelerated aging caused by a gene mutation.
The 6-year-old kindergarten student at Monclova Primary School started the first clinical drug trial for progeria in 2007 and began a new triple-drug trial last month.
Kaylee and the Halkos will be featured in a TLC documentary tentatively titled “Old Before Their Time” scheduled to air in December.